So, February 28th is my start date for Remicade® (Infliximab). I’m pretty excited! But probably not for the obvious reason (that being it hopefully will stop the inflammation and quiet my Crohn’s a bit). No, I’m excited because I have another chance to develop super powers. I was pretty bummed it didn’t happen with Humira®. Cimzia was a bust as well. But Remicade. That’s the ticket. I mean this stuff so mirrors the super-serums from my
(Or “I’m getting an F in Chronic Illness”) Back in my school days I wasn’t the sharpest tool in the shed. Don’t get me wrong, I wasn’t a horrible student by any means (unless it involved math – couldn’t stand math!) but I also wasn’t “Mister 4.0”. Fast forward to my adult life and my Crohn’s diagnosis and I sort of feel like I am back in school. Only this time around I am
“I wonder if the snow loves the trees and fields, that it kisses them so gently? And then it covers them up snug, you know, with a white quilt; and perhaps it says “Go to sleep, darlings, till the summer comes again.”
The following is a guest post from Rebecca Kaplan. Rebecca’s husband has Crohn’s disease and Rebecca writes a very informative blog: Caring for Crohn’s & UC which can be found here: caringforcrohns.com Clearing the Air About Crohn’s & UC There’s been a lot of confusion recently inside and outside of the IBD community on the differences between Crohn’s disease, ulcerative colitis and colitis and whether or not you can have
I had the distinct honor of being on the IBD Round Table last evening. Frank Garufi is the creator of the Round Table and hosts a new discussion each month. Frank is an IBD advocate and has a young son with Crohn’s disease. Please subscribe to Frank’s YouTube channel. His contact information is as follows: Frank Garufi Jr. Crohn’s and Ulcerative Colitis Advocate The Crohn’s Colitis Effect Website / Google+ Page / Facebook / Twitter The IBD Round Table Discussion Subscribe
(The things that prednisone does to me. The field where I lay my body. A snake. Coming to grips with that thing called mortality). Pills everywhere. Lined up on the surface of my coffee table. I count the pills. Stare at the pills. I take the pills. Shove them into my gullet and let them start their journey. Water them. Feel them disperse in the void that is my body. It’s just before midnight.
… or back to square one … “Between the searching and the need to work it out / I stop believing everything will be alright / Broken / We are broken” Broken – Tears for Fears Back in the mid-nineties ABC aired a highly-successful yet barely-made-it-through-one-season show called “My So-Called Life” starring Claire Danes. My celebrity crushes go like this: #1) Keri Russell. #2) Claire Danes. My wife’s celebrity crushes go like this” #1) Adam Levine.
Taken directly from their website: “Stealth Belt Ostomy Support Belt gives people who wear an ostomy or urostomy pouch better ostomy care options after colectomy, ileostomy, urostomy and other colorectal surgeries. Stealth Belt Ostomy Support Belt provides twenty-four hour comfort, protection and support. Stealth Belt is a real solution for your ostomy care needs.” I owned two Stealth Belts. I used them for swimming. I used them mainly to hold my pouch so
So, please don’t think I am cheating for my personal challenge on day 3 of IBD Awareness Week. Any IBDer who has been on or who is currently taking HUMIRA® will tell you it HURTS. Here is a short video showing how to inject it. Believe me, I would rather do the pull-up challenge again.
December 1st through the 7th is IBD Awareness week. I will be attempting various physical challenges each day. Not really sure how this raises awareness but it is what it is. I do plan on a video of me injecting Humira® and I also have a pouch changing tip I would like to record. That last one will perhaps help inform some people on just what a Stoma is. Yesterday was day 1 and my
I got up three times Thursday night to go to the bathroom. Not too bad. Used to be eight to twelve times before I had my colon removed. And even though surgery is not a cure for my Crohn’s, I at least had the chance to get up and go. Early Friday morning (using my phone as a flashlight to navigate the hallway to the bathroom as I never know what my son may have left on the
I was recently asked by the wonderful folks over at the Great Bowel Movement to write a guest post detailing our first attempt at the Lake Erie Swim 4 Crohn’s/Colitis. You can find that on their blog at this address: http://thegreatbowelmovement.org/swimming-for-crohns-ryan-stevens/ While there be sure to order yourself one of their awesome IBD t-shirts!
(This is about my first trip to the mall after my ileostomy surgery. I had just spent 14 days in the hospital. When I asked my wife to take me there the look of shock on her face was priceless. I avoid the mall like the people there are shuffling around with the plague or something worse. I ended up having to take a break in the food court. Big mistake. Especially since the list
Flying Air Crohn’s / The giant, lemon-sized pill / A constellation of me. I want to give in. I can’t take the routine anymore. Every day it’s the same crap. I sleep best in the early morning. Not really sure why. Perhaps because I get up eight or so times at night to go to the bathroom. Perhaps by the morning I am just so exhausted there is nothing else I can do. My body folds in
(OR THE “MY IMMUNE SYSTEM IS A TOOL CONJECTURE”). If you read this site’s disclaimer then you know that I’m not a doctor (I don’t even play one on TV). Now, many people ask me, “Just what is Crohn’s disease?” Of course I want to sound all intelligent and wow them with my knowledge so usually I give them the medical definition from the Cleveland Clinic’s website. But lately I’ve come to realize I should just
WHAT THE HELL IS THAT? SOUNDS LIKE A CHARACTER’S NAME IN A REALLY BAD VAMPIRE MOVIE. Fistula. Such a strange sounding word. Think of the game “Chutes and Ladders.” Do you remember that game? A fistula is like a chute. It forms between your bowel and different organs within your body. Or, it can come right out of your body, say through your stomach. Mine was a peri-anal fistula which means it ended in my anus. Yeah! What
(I’M SORRY, BUT YOU WANT TO SHOVE WHAT WHERE?!?) We arrive at my colonoscopy appointment with plenty of time to spare. The waiting room is small and stuffed with mostly elderly people. Most of us in that room, in just a short while, will be undergoing the same procedure. It is a bleak, overcast day and I’m content just looking out the window blissfully unaware of the back and forth banter of those around
(Or the ”I become unstuck and go” conversion.) Back in my first two years of college every once in a while on a Saturday we would have swim practice in the ocean. I hated those Saturday mornings. Push-ups and sit-ups in the sand followed by a long open water swim. I didn’t mind the physical exertion. And it wasn’t even my fear of ocean critters coming up to munch a little on my extremities that was