So, please don’t think I am cheating for my personal challenge on day 3 of IBD Awareness Week. Any IBDer who has been on or who is currently taking HUMIRA® will tell you it HURTS. Here is a short video showing how to inject it. Believe me, I would rather do the pull-up challenge again.
December 1st through the 7th is IBD Awareness week. I will be attempting various physical challenges each day. Not really sure how this raises awareness but it is what it is. I do plan on a video of me injecting Humira® and I also have a pouch changing tip I would like to record. That last one will perhaps help inform some people on just what a Stoma is. Yesterday was day 1 and my
I got up three times Thursday night to go to the bathroom. Not too bad. Used to be eight to twelve times before I had my colon removed. And even though surgery is not a cure for my Crohn’s, I at least had the chance to get up and go. Early Friday morning (using my phone as a flashlight to navigate the hallway to the bathroom as I never know what my son may have left on the
I was recently asked by the wonderful folks over at the Great Bowel Movement to write a guest post detailing our first attempt at the Lake Erie Swim 4 Crohn’s/Colitis. You can find that on their blog at this address: http://thegreatbowelmovement.org/swimming-for-crohns-ryan-stevens/ While there be sure to order yourself one of their awesome IBD t-shirts!
(This is about my first trip to the mall after my ileostomy surgery. I had just spent 14 days in the hospital. When I asked my wife to take me there the look of shock on her face was priceless. I avoid the mall like the people there are shuffling around with the plague or something worse. I ended up having to take a break in the food court. Big mistake. Especially since the list
Flying Air Crohn’s / The giant, lemon-sized pill / A constellation of me. I want to give in. I can’t take the routine anymore. Every day it’s the same crap. I sleep best in the early morning. Not really sure why. Perhaps because I get up eight or so times at night to go to the bathroom. Perhaps by the morning I am just so exhausted there is nothing else I can do. My body folds in
(OR THE “MY IMMUNE SYSTEM IS A TOOL CONJECTURE”). If you read this site’s disclaimer then you know that I’m not a doctor (I don’t even play one on TV). Now, many people ask me, “Just what is Crohn’s disease?” Of course I want to sound all intelligent and wow them with my knowledge so usually I give them the medical definition from the Cleveland Clinic’s website. But lately I’ve come to realize I should just
WHAT THE HELL IS THAT? SOUNDS LIKE A CHARACTER’S NAME IN A REALLY BAD VAMPIRE MOVIE. Fistula. Such a strange sounding word. Think of the game “Chutes and Ladders.” Do you remember that game? A fistula is like a chute. It forms between your bowel and different organs within your body. Or, it can come right out of your body, say through your stomach. Mine was a peri-anal fistula which means it ended in my anus. Yeah!
(I’M SORRY, BUT YOU WANT TO SHOVE WHAT WHERE?!?) We arrive at my colonoscopy appointment with plenty of time to spare. The waiting room is small and stuffed with mostly elderly people. Most of us in that room, in just a short while, will be undergoing the same procedure. It is a bleak, overcast day and I’m content just looking out the window blissfully unaware of the back and forth banter of those around
(Or the ”I become unstuck and go” conversion.) Back in my first two years of college every once in a while on a Saturday we would have swim practice in the ocean. I hated those Saturday mornings. Push-ups and sit-ups in the sand followed by a long open water swim. I didn’t mind the physical exertion. And it wasn’t even my fear of ocean critters coming up to munch a little on my extremities that was
… WHICH MEANS YOU REALLY DON’T SINCE THIS IS THE ER AND WE DON’T KNOW WHAT THE HELL WE’RE TALKING ABOUT. And so that was my diagnosis. Hemorrhoids. The Terminator ER Dr. explained this to me while wadding up his EXTRA-LARGE examination gloves and throwing them away. Of course, he was wrong. Of course, this misdiagnosis cost me a pretty penny. Look, the ER is a great place when you are having a heart attack or stroke. Or
The ER doctor shuffled into the room looking disheveled, worn out even. Most likely he was halfway into a double shift and just wanted to go home. Of course, ever since I started watching Grey’s Anatomy I’m suspicious of all hospital doctors. I mean, if I’m to believe the show, every chance these people get they are humping each other in supply closets, in bathrooms, inside of ambulances. You name it, if it is wider than
You ever see Jurassic Park? You know the wannabe, Colonel Sanders grandpa guy who created the place and brought everyone there to the island? Remember how he said in dramatic fashion, “Welcome…to Jurassic Park!” Yeah, that’s how, in your mind, you should read the title of this blog post. “Welcome…to the ER!” A place where things start quite normal and hunky dory but quickly descend into a nightmare replete with hungry, sharp-toothed dinosaurs clamoring to get
I am taking a detour from my normal chronological postings to post this “advice” for those struggling with their Crohn’s or Colitis. I put “advice” in quotes because that is exactly what it is. I never pretend that I have all or any answers. I just know what I went through. Also, if you would like to leave a comment you have to click on the “Read More” button at the end of the post.
(Or the “I’m John Lithgow and there’s a creepy Gremlin-thingy living in my toilet” Speculation) You ever been stabbed before? Don’t answer that. I’ve never been. About the closest I have come I guess is when I had a fissure. At the time I didn’t know that was the technical term for the pain I was experiencing. Like everything else I had no idea what a fissure was. But of course, I somehow ended up
Game of Thrones. Have you read the books, seen the show? I haven’t. Not really my thing. My little brother talks about it all the time though. He is trying to convince me to watch it. Since I am no longer a slave to my couch and forced to watch really bad television at two in the morning I am sort of resisting. So, I asked him to give me an overview on the show
Michael Jackson. No need to explain who that guy was, right? If I asked some of you what was his signature move I’m sure we would hear “Moonwalk.” Honestly though, I’m pretty sure most people would say his signature move was him grabbing his crotch. Not really sure why, but that dude had an affinity for grabbing his junk. When my intense bouts with diarrhea first struck I discovered I had an affinity for grabbing my butt
AND BOY IS HE GOING TO MAKE YOU FEEL SPECIAL. Especially since you have to wait a month to see him. Wouldn’t that make you feel special? The official name is Gastroenterologist. Those in the know just call him “My Gastro” or “My GI.” Basically I started seeing so much of this guy I should have just moved into his office.
Except maybe make me crap more. Or not, who knows? I gave it a week but I saw no improvement. In fact my RMJ was getting worse (or better, depends on how you look at it). Of course, I wasn’t about to make a career change and try and be a back-up dancer for Brittany Spears. So, back to my Doctor I went.
My doctor is a pretty cool dude. He has tattoos and piercings. I think he is actually younger than me. He is a runner. Which I like. Seeing how I think myself an athlete. Our relationship has always been a simple one: Colds; the occasional bout of the flu; working out a treatment plan for my exercise induced asthma. That day things got complex though. He offered his hypothesis that I probably just had the
Taken directly from their website: “Stealth Belt Ostomy Support Belt gives people who wear an ostomy or urostomy pouch better ostomy care options after colectomy, ileostomy, urostomy and other colorectal surgeries. Stealth Belt Ostomy Support Belt provides twenty-four hour comfort, protection and support. Stealth Belt is a real solution for your ostomy care needs.” I owned two Stealth Belts. I used them for swimming. I used them mainly to hold my pouch so that it didn’t just flap about in the water.
This is a fundraising part of the CCFA. I hope to participate in one of their races in 2013. Preferably a Triathlon. In fact, I was hoping that Mike McCready, guitarist for Pearl Jam, would agree to be on a Relay Team with me. I would do the swim. He could handle the Run. We would just need a biker. Taken directly from their website: “Team Challenge is the Crohn’s & Colitis Foundation’s endurance training and