20 Oct < > A last road home. Posted In : Blog, Crohn's Disease, IBD Community 20 Oct Ryan 7 Comments EmailLike this:Like Loading... 7 Comments Jeannie Reply Beautifully written. Crohn’s is such a devastating disease. I really knew nothing about it until my 40 y/o son got it. I had heard of it and when the doctor told him he had Crohn’s, I thought–great he’ll give him a pill and he’ll be all fixed up. Little did I know the road that was ahead of him. He’s about two years into it and has severe Crohn’s. So far, no surgery but who knows? Remicade did nothing for him; he’s about to start on Humira on Tuesday. I pray for all of you who are battling Crohn’s. A research doctor told him that there will be a cure in his life time. I sure do hope that he is right about that. God Bless you and everybody else who is on this Crohn’s journey.and God Bless the family of this young mother who was taken much too soon. Ryan Reply Thank you for your nice comments. I do hope your son finds his answer. Sounds eerily familiar to my own journey. Crohn’s and Colitis truly are debilitating diseases that need more research funding. I too hope we have a cure and soon. Michele Hunsaker Reply Beautiful tribute. Gave me goosebumps. We definitely need a cure for this invisible disease Ryan Reply Thank you for commenting. I couldn’t agree with you more. Just learned of 3 other deaths in the past week all from IBD. Sarah Reply As I sit here at 2 AM waiting for my pain medication to kick in, I’m moved to tears. Not only from your story of a woman who could be any of us, but because of the empathy felt from both the reader and the writer. I’m a 22 year old college student who was diagnosed in 2008, but it hasn’t gotten easier to deal with. Every time I try to rise above the fact I’m chronically ill, it’s time for the next Remicade infusion or I’m in the ER for kidney stones. Whatever it may be, it just doesn’t end. And it’s hard for me because I don’t have many people to talk to. I have a few friends who’ve been recently diagnosed who ask me for advice, so I stay strong for them because I know they need someone who understands. But I don’t like to seem vulnerable, so it’s a one way street. I love to be there to help them through because I’m the veteran, but being physically ill, I don’t want to add a mental vulnerability to the mix. So I stay silent and supportive, never showing my own personal struggles. I get the “I’m sorry” from my family when I’m not feeling well, and I know it’s genuine. But the sympathy doesn’t equate to the empathy. The empathy that, as I lay in my bed in pain from my arthritis and kidney stone brought on from my Crohn’s, your post gave me. So thank you for writing this. A sincere thank you. Ryan Reply Thank you for your kind words. Please stay strong. Do you have any IBD support groups near you? Sometimes they can help. There is also a Facebook group called IBD Journeys. It is a closed group so you have to ask to be added and it is completely private. Wonderful group of people on there who get what you are going through. Gina Wyatt Reply This is so real, I get scared of death all too often, my youngest child has some major anxiety issues because of my health! I pray for God to wrap her babies in his safe and loving arms! WE DESERVE A CURE! Post a Comment Click here to cancel reply. Your Name Your Email Address Your Message Notify me of follow-up comments by email. Notify me of new posts by email.